I’ve been a little bit morbid since childhood. My father died when I was not quite 10 years old, and my mother was a huge fan of horror novels and scary movies. But I became seriously interested in death and dying when my mother got cancer and was facing the end of her own life. I acted as her medical advocate and participated in many aspects of her care. I'm also a sociologist who studies taboo elements of culture and I'm invested in creating a consciousness shift so that the United States is less death-phobic, allowing us all to live our lives more fully by addressing our mortality head-on!
I wrote...
Bound: A Daughter, a Domme, and an End-of-Life Story
Unflinchingly honest and darkly funny, Bound is a memoir about helping my mother, Judy, through the last illness of her life. This is complicated by the fact that Judy has only recently lived through a wonderful sexual awakening and isn’t ready to let go of her new relationships and pleasures.
Throughout their journey, Judy’s penchant for denial and childlike tendency toward magical thinking lead to moments of humor even as I battle the red tape of hospital bureaucracies, the frustration of planning in the midst of an unpredictable illness, and the unintentional inhumanity of a healthcare system that too often fails to see the person behind the medical chart.
I read this book for the first time about five years ago, and my first thought when I finished it was, “Everyone who is going to die needs this book.” This is the best thing I’ve read on the personal choices around dying and supporting someone who is dying.
I love the clear, level-headed, plain-spoken, simple, and elegant text and the way that Tisdale uses personal storytelling and philosophical reflection to help us address what we might otherwise avoid. I will return to this book over and over as I support sick or dying friends, and you can bet it will be on my bedside table if I am ever diagnosed with a terminal illness.
Award-winning writer and nurse Sallie Tisdale offers a lyrical, thought-provoking yet practical perspective on death and dying in this frank, direct and compassionate meditation on the inevitable. _______________________________________
From the sublime to the ridiculous, Tisdale leads the reader through the peaks and troughs of death with a calm, wise and humorous hand. More than a how-to manual or a spiritual bible, this is a graceful compilation of honest and intimate anecdotes based on the deaths Tisdale has witnessed in her work and life, as well as stories from cultures, traditions and literature around the world.
Atul Gawande is a doctor who writes like he’s a warm-hearted friend. I love the way that Gawande weaves stories about his medical practice into the story of his father’s life and death, while making deep insights into how we can improve hospital care, nursing home care, and end-of-life care for all.
I especially loved the chapters focused on re-envisioning health care and housing options for the elderly and ill. I love Gawande’s accessible style and the way he offers hope by looking at these issues from a very human perspective even when revealing problems that seem insurmountable from a distance.
'GAWANDE'S MOST POWERFUL, AND MOVING, BOOK' MALCOLM GLADWELL
'BEING MORTAL IS NOT ONLY WISE AND DEEPLY MOVING; IT IS AN ESSENTIAL AND INSIGHTFUL BOOK FOR OUR TIMES' OLIVER SACKS
For most of human history, death was a common, ever-present possibility. It didn't matter whether you were five or fifty - every day was a roll of the dice. But now, as medical advances push the boundaries of survival further each year, we have become increasingly detached from the reality of being mortal. So here is a book about the modern experience of mortality - about what it's…
This book is deceptively short for something as deep and thoughtful. I loved this because of its focus on nonjudgmental, openhearted caregiving.
I wish I’d had this book when my mother was dying and I was acting both as her emotional supporter and her medical advocate. I frequently erred on the side of being her advocate and neglected my role as emotional supporter. This tiny little incredibly powerful book would have helped me tremendously! I will revisit it often.
Loss is difficult...and universal. What do we say? What do we do?
Part how-to guide, part hopeful manifesto, Cultivating the Doula Heart provides a clear framework for supporting those facing hardship, grief, and loss. Succinct and straightforward, this "work of heart" covers: Components of Doula Care, Aspects of Loss, Ways of Being/Ways of Doing, Grief Support, and Contemplative Exercises.
Readers will feel empowered to move from sympathy to empathy to compassion. The doula heart can be readily infused into all work and into any relationship.
Before I read this book I hadn’t understood the many different ways that scientists have defined “death.” (Are you dead when your heart stops? When you stop breathing? When your brain function ends?)
Reading this gave me a much deeper understanding of the medical, legal, and ethical issues around declaring someone dead, while also helping me understand that the body is always dying even as it is healing itself and thriving.
I loved the historical view of death and the exploration of interventions like mechanical ventilation and CPR. I loved Warraich’s ability to make complicated medical or biological concepts understandable to me as a nonscientist and I loved that he wove in personal stories to bring the ideas to life. My copy has a ton of dog-eared pages!
"Warraich's elegant and poignant book takes us on an unforgettable journey....He succeeds in humanizing a complex topic." ―Siddhartha Mukherjee, New York Times bestselling author of The Gene
There is no more universal truth in life than death. No matter who you are, it is certain that one day you will die, but the mechanics and understanding of that experience will differ greatly in today’s modern age. Dr. Haider Warraich is a young and brilliant new voice in the conversation about death and dying. Dr. Warraich takes a broader look at how we die today, from the cellular level up to…
I could not resist this book partly because I was already familiar with Doughty’s, “Ask a Mortician” YouTube series. I loved the way that she used her own experience as a young crematory operator, weaving in details of her personal life along the way, to show us all the different things that happen to bodies after they die.
I loved the dark humor she brought to subjects like embalming, cremation, and funeral directing. The poignant stories about collecting bodies from the places where they died, cremating bodies, and talking to family members or loved ones, helped me see the deeply human side of death care, and I certainly came away understanding a lot more about the realities of different body preparation and disposition options!
Armed with a degree in medieval history and a flair for the macabre, Caitlin Doughty took a job at a crematory and turned morbid curiosity into her life's work. She cared for bodies of every color, shape, and affliction, and became an intrepid explorer in the world of the dead. In this best-selling memoir, brimming with gallows humor and vivid characters, she marvels at the gruesome history of undertaking and relates her unique coming-of-age story with bold curiosity and mordant wit. By turns hilarious, dark, and uplifting, Smoke Gets in Your Eyes reveals how the fear of dying warps our…
This irreverent biography provides a rare window into the music industry from a promoter’s perspective. From a young age, Peter Jest was determined to make a career in live music, and despite naysayers and obstacles, he did just that, bringing national acts to his college campus atUW-Milwaukee, booking thousands of concerts across Wisconsin and the Midwest, and opening Shank Hall, the beloved Milwaukee venue named after a club in the cult film This Is Spinal Tap.
Jest established lasting friendships with John Prine, Arlo Guthrie, and others, but ultimately, this book tells a universal story of love and hope…
We Had Fun and Nobody Died: Adventures of a Milwaukee Music Promoter
The entertaining and inspiring story of a stubbornly independent promoter and club owner
This irreverent biography provides a rare window into the music industry from a promoter’s perspective. From a young age, Peter Jest was determined to make a career in live music, and despite naysayers and obstacles, he did just that, bringing national acts to his college campus at UW–Milwaukee, booking thousands of concerts across Wisconsin and the Midwest, and opening Shank Hall, the beloved Milwaukee venue named after a club in the cult film This Is Spinal Tap.
This funny, nostalgia-inducing book details the lasting friendships Jest established…